CFCCC
ABOUT CFCCC

* Who We Are

* Join Us!

TOPICS

* Chronic Fatigue Syndrome,
Fibromyalgia, and
Chemical Sensitivity

RESOURCES

* Resource Guide

* Advocacy
* Children and Youth
* Crisis Lines
* Dental Care
* Doctors Etc.
* Education
* Employment
* Environment
* Financial Services
* Food and Related
* Frugal Living
* General Services
* Health Care Services
* Home Delivered Anything
* Housing
* Improving the Quality of Life
* Legal Services
* MCS
* Medical Supplies
* Medicare/Social Security
* Mind/Body Work
* Pets
* Pharmacies / Medical Supplies
* Phone Numbers to Know
* Seniors
* Social Life
* Social Services
* Support Groups
* Transportation
* Troubleshooting
* Veterans Services
* Vision Impaired Services
* Voting Information
* Websites

* Canary Times

 

* Contact Us

 

 

CFCCC Resource Guide

Support Groups

Support Groups

 

Illinois

 

AFFTER

Advocates for Fibromyalgia Funding, Treatment, Education and Research

Shari Ferbert, President

847-362-7807

PO Box 768

Libertyville, IL  60048-0768

Fax: 847-680-3922

email:  info < at > affter.org

www.affter.org

 (also, look up support groups in Rantoul and Antioch)

 

Bloomington-Normal

Meets last Tuesday of the month 6 P.M.  No meeting in December.

The Lounge at first United Methodist Church

211 N. School Street—Normal

Call Evonne Wurmnest (309) 452-2477

or contact:

Ms. Joyce Kaye

2 Sunshine Court

Bloomington, IL  61704-2342

309-663-0564

 

Ms. Lisa Schicht

Chronic Fatigue Syndrome Wellness Group

2502 Myers Court, Apt. 2

Champaign, IL  61822-6854

217-355-4630

 

Chronic Fatigue Syndrome, Fibromyalgia & Multiple Chemical Sensitivity Coalition of Chicago

Barbara Morrison, President

PO Box 277

Wilmette, IL 60091

Ph: 312-409-5363

Fax: 847-920-9166

Email: EditorCCFSA < at > aol.com or editorcfccc < at > aol.com

Website: www.CFCCC.net

Newsletter:  Canary Times

 

Ms. Kathleen Gale

CFCCC Parent Support Group

Chicago, IL  60630

Contact via CFCCC: (312) 409-5363

Contact and support group for parents/family that have children with CFIDS.

 

The Chronic Fatigue Syndrome Society of Illinois (CFSSI)
Ronald G. Gilbert, D.D.S.

PO Box 5102
Skokie, IL 60076
Voice: 312-372-0888
Web: http://members.aol.com/cfssi/ 
Email: cfssi < at > aol.com


CFS/FM Support Group of Bloomington/Normal

The Lounge at First United Methodist Church

211 N. School Street

Normal, IL  61761

Ms. Evonne B. Wurmnest

309-452-2477

 

Parental Support

Parents Anonymous® of Chicago, Illinois

(773) 429-0300    

 

Wisconsin

 

Appleton/Fox Cities Support Group

Ms. Geraldine Baumgart

1228 West 8th Street

Appleton, WI  54914

920-731-2697

 

Barron County Support Group Fibromyalgia / CFIDS/ Chronic Pain
Meets every 2nd & 4th Thursday of every month
from
1pm to 3pm at the Rice Lake, WI. City Hall

Ms. Sally Borden, contact person

715-924-4904

 

Ms. Ruth E. Clark

786 Inman Parkway

Beloit, WI  53511-1742

608-362-1665

 

Wisconsin First Step Hotline

Provides statewide information and referrals to assist professionals and families who have children with special needs.  24 hour services.

1910 South Avenue

La Crosse, WI  54601

www.mch-hotlines.org or call the toll-free: 800-642-7837 Voice/TTY.

 

Mr. John Brian Paprock

CFIDS Support and Information

Madison, WI 

608-236-9622

 

Ms. Susan Sweet

327 North 2nd Street

Medford, WI  54451-1468

715-748-6587

 

Wisconsin CFS Association

747 Lois Drive
Sun
Prairie, WI 53590
608-834-1001

www.wicfs-me.org

 

Ms. Judy O'Connor

1905 Centennial Lane

Racine, WI  53406

262-886-1277

 

Ms. Lois Menninga

1075 County Road E

Rewey, WI  53580

608-943-8028

 

Ms. Pat Fero

WI Support Information for Kids

1408 Coral Drive

Sun Prairie, WI  53590-1921

608-837-9540

work ph:  608-834-1001

 

Indiana

 

South Central Indiana Fibromyalgia Support Group

1221 Shadeland Drive

Bloomington, Indiana 47403

(812) 333-1843

We meet the second Wednesday of every month at 6:30 at the Monroe County Public Library. Contact person is Chris Woods, a public health educator who has fibromyalgia and has spent 7 years researching and helping others learn about this syndrome.

 

Janet and Blythe Battram

Indiana CFS/FM Association-Evansville Chapter

520 East Mill Road

Evansville, IN  47711-2240

812-425-4815

 

Ms. Jyoti Hansa (group is defunct, but will share info)

1064 West 37th Street

Indianapolis, IN  46208-4138

317-925-6122

 

Ms. Roxanne McCreary

Living Well with Fibromyalgia

Health South Rehabilitation

501 East St. Anthony Drive

Terre Haute, IN  47804

812-238-0897

Meets every 3rd Saturday of the month from 1 PM to 3 PM.

 

Iowa


Webster County Fibromyalgia, Chronic Fatigue,
and Immune Deficiency Support Group

When: 1st and 3rd Monday of each month.
Time:
1:30 p.m.

Phone: (515) 955-7195 ask for Deb.

 

Lakeview Medical Park
6000
University Ave
West
Des Moines, Iowa

When: 3rd Thursday of each month, except December.
Time:
7:00 p.m.
Where: 1st floor conference room

Phone: (515) 263-5184 This number is for hospital information.

 

Support Groups for Other Invisible Illnesses:

 

American Academy of Ophthalmology’s Eye Care America – National Eye Care Project (NECP)

 

A program that provides eye care for Medicare beneficiaries who have diabetes and who have not had a medical eye exam in the last three years.  In coordination with the Health Care and Financing Administration (HCFA) and the American Optometric Association (AOA).

NECP: 800-222-EYES (800-222-3937)

AOA’s Diabetes Hot Line: 800- 262-3947

 

American Diabetes Association

 

ATTN: Customer Service
1701 North Beauregard Street
Alexandria, VA  22311

Ph: 800-342-2383

Email: customerservice < at > diabetes.org

Website: www.diabetes.org

 

American Diabetes Association
Northern
Illinois Area

Supports a variety of diabetes research, information, and advocacy programs.  Provides educational programs and support groups, camps for children, teens, and weekend retreats for teens and families.

 

In Northern Illinois and Northwest Indiana contact:

American Diabetes Association

6 North Michigan Avenue - Suite 1202

Chicago, IL 60602

Ph: 312-346-1805, 888-342-2383

Fax: 312-346-5342

Website: www.diabetes.org

 

Arthritis Foundation: Greater Chicago Chapter

29 East Madison

Suite 500

Chicago, IL 60602

312-372-2080

info.gc < at > arthritis.org

http://ww2.arthritis.org/Communities/Chapters/Chapter.asp?chapid=11 

 

Celiac Disease Foundation

 

13251 Ventura Blvd., No. 1

Studio City, CA  91604-1838

Ph: 818-990-2354

Fax: 818-990-2379

Email: cdf < at > celiac.org

Website: http://www.celiac.org

 

Fibromyalgia Aware

National Fibromyalgia Association (NFA)

Lynne Matallana, President

2121 S. Towne Centre Place, Suite 300

Anaheim, CA 92806

Phone: (714) 921-0150

Fax: (714) 921-6920

www.fmaware.org

 

Gluten Intolerance Group of North America

 

31214 124th Ave SE
Auburn WA 98092-3667
Phone: 253-833-6655
Fax: 253-833-6675

Email: info < at > gluten.net

Website: http://www.gluten.net

 

Joslin Diabetes Center

 

Provides a wide variety of books, videotapes and other educational materials on diabetes for adults and children.

 

One Joslin Place

Boston, MA 02215

Ph: 617-732-2400, 1-800-344-4501 (to order books)

Website: www.joslin.org

 

Lupus Foundation Of Illinois

20 E. Jackson Boulevard, Suite 1150

Chicago, IL 60604
312-542-0002

Fax: 312-542-0003

info < at > lupusil.org

http://www.lupusil.org/

 

National Multiple Sclerosis Society

Chicago & Greater Illinois Chapter

Referrals to diagnostic and medical exams, social service and therapy.

Monthly newsletter and meetings.

 

910 W Van Buren St # 4
Chicago, IL 60607
(312) 421-4500

 

National Groups

 

American Gulf War Veteran's Association

3506 Highway 6 South #117

Sugarland,TX 77478-4401

1-800-231-7631 281-438-1699

(Fax) 281-438-4581

http://www.gulfwarvets.com/

 

The CFIDS Association of America, Inc.
PO Box 220398
Charlotte, NC 28222-0398
Resource Line: 704-365-2343
Newsletter:  
CFIDSLink

 

Chemical Injury Information Network

P.O. Box 301

White Sulphur Springs, MT 59645

406-547-2255

Fax:  406-547-2455

web site: http://ciin.org/

Cynthia Wilson, Executive Director

Publish the newsletter Our Toxic Times.

 

Ecological Health Organization (ECHO)

PO Box 8232

Berlin, Connecticut 06037

570-472-0374  

ECHOMCSCT < at > aol.com

http://www.ECHOMCSCT.homestead.com

 

The Environmental Health Network (EHN)

PO Box 1155

Larkspur, CA 94977-1155

voicemail/support and info line: (415) 541-5075

website: http://www.ehnca.org

 

Environmental Research Foundation

Peter Montague, Ph.D.

PO Box 160

New Brunswick, NJ  08903-0160

732-828-9995

fax:  732-791-4603

e-mail:  erf < at > rachel.org

website:  www.rachel.org

newsletter:  Rachel's Environment & Health News

 

Fibromyalgia Network

P.O. Box 31750

Tucson, AZ 85751-1750

520-290-5508

800-853-2929

website:  www.FMnetnews.com

 

HealthCare Without Harm

 

Mission: To transform the health care industry worldwide, without compromising patient safety or care, so that it is ecologically sustainable and no longer a source of harm to public health and the environment.

 

HCWH Membership Services
1901 N. Moore Street
Suite 509
Arlington, VA 22209
ph: 703-243-0056
fax: 866-438-5769

Colleen Funkhouser
cfunkhouser < at > hcwh.org

website:  www.noharm.org 
 

The Human Ecology Action League, Inc. (HEAL)

 

Gathers and provides information; publishes quarterly magazine, The Human Ecologist.

 

P.O. Box 29629

Atlanta, GA 30359-0629

Ph: 404-248-1898

Fax: 404-248-0162

Email: HEALNatnl < at > aol.com

Website: http://members.aol.com/HEALNatnl/

 

MCS Information Exchange

Alison Johnson

P.O. Box 213

Brunswick, ME 04011

207-725-8570

email:  alisonjmcs < at > aol.com

alisonjohnsonmcs.com

 

MCS Referral & Resources

508 Westgate Road

Baltimore, MD 21229-2343

410-889-6666

e-mailadonnay < at > mcsrr.org

web page: http://www.mcsrr.org/

 

National Center for Environmental Health Strategies (NCEHS)

1100 Rural Ave. Vorhees, NJ 08043

856-429-5358

mary < at > mcehs.org

http://www.ncehs.org/ (website currently down, 8/07)

Mary Lamielle, Director

 

National Coalition For The Chemically Injured (NCCI)

Lawrence Plumlee, MD

5717 Beech Ave.

Bethesda, MD  20817-2563

Phone/FAX: 301-897-9614

laplumlee < at > pol.net
www.rtknet.org/ncci

 

The National Forum:  Quarterly publication on CFIDS/ME, FMS, GWI, MCS, and related illness.  Subscription is included with $25 annual membership donation to The National CFIDS Foundation.

National CFIDS Foundation

103 Aletha Road

Needham, MA 02492-3931

781-449-3535
FAX:  781-449-8606
E-mail: info < at > ncf-net.org

http://www.ncf-net.org/forum.htm

 

Through the Looking Glass

 

National resource center for parents with disabilities:  provides newsletter, video library, support groups, research conferences, publications, also provides home-based services to families with disability and medical issues.

 

2198 Sixth StreetSuite 100

Berkeley, CA 94710

Ph: 800-644-2666 (Voice), 800-804-1616 (TTY), 510-848-1112

Fax: 510-848-4445

Email: tig < at > lookingglass.org

Website: http://www.lookingglass.org